|Thank you so much!|
Thanks to the help and including Early Intervention's, here is what Bryce can do with his new wheels. I had tears of joy today watching Bryce play with the magnets on the refrigerator for the first time. He was able to be wheeled over to the Xmas tree and shrieked with excitement as he could touch the branches. We walked around the house and I am so happy for him to have more independence.
Thank you everyone for giving us the best gift of all- love and friendship
Thank you especially to the McClaugherty's, Lisa, Chuck, Haily and Sawyer, Steve and Renee as well as the Hosford's, Kim, Frank, Bruce and Sharon, Jeremy, Gina, and the girls thank you all for you donations. Thank you for sponsoring Hailey. A huge thank you to April and Rob Coomer, Orian and Jen Morrisey, Todd and Cher Bertges, Kara, Kenya, Katie, Bill and Carol North, Shaun Stuhldryer, Vince Kingston and Family, Lisa Adamson, Almiro A Dossontos. Batinah, Alicia McVicker, Kyle Millar, Rammon Turner, Tammy Schaber, Ramona O'Niel, Cara Pepper, Jeff Brandt, Ann Wales, Jan Nami and Carrie and Jason Tillotson, Kathy and Richard Oathes, Elaine Kallis, Trish Narimatsu, Kathleen, Eyal and Steph Amiel, Regina and Jim,
Last week Bryce made it up to 16.5 lbs and this week back to 15.12. So he lost weight for the first time ever and its very sad. We were so happy with his weight gain. Thisis very stressful for us as a family but we have to just focus on the positive and think about everyone who is supporting and praying for us. This gets us through these challenging days and or weeks. I hope this next week will be better. We were back at the hospital this morning and put back int he NG tube. I spent 2 hours at the doctors office on Friday trying to find the best care plan for Bryce. I had thought if he lost weight they would simply admit him and he would have an emergency gtube placement. Apparently its not that simple or as easy as the doctors at Shriners had told us. Its still considered elective surgery. We are at the whim of the doctors to get us in for consults of the placement and have tried many times to see them but they have rescheduled us several times. We feel the universe is telling us again and again that Bryce can fight and he can do it. We just have to be patient, pray, meditate and try to get the little man to eat more on his own. Last week he had the most weight gain ever. 6 oz. We look forward to family and friends to visit us because they really help us cheer up, stay positive and help get Bryce to eat. We sing lots of eating songs.
What an angel. He falls right asleep in our arms.