Monday, January 7, 2013

Happy 2013! Almost 1 Year!

Happy New Year 2013!!
Last week Bryce weighed in at 16.1 lbs. He is 11.5 months old and we are looking forward to throwing him an amazing party on the 26th.

Thank you my sweet angel for eating more and for being such a cute and loving child. Everyday is such a precious day watching you grow and become stronger.

Our goal is to reach 17.5 by his first birthday. This weekend we did celebrate that he is back up after a few weeks of being down due to a severe ear infection. According the to the standard growth chart of weight gain and his age, he is still failing to thrive at 0% weight. If we can reach our goal, he will be in the 5%. For children with SMA, this is a good percentage.  We are hopeful and positive that we can do it; please however no more ear infections!!

Twice, before Christmas, the doctors wanted to hospitalize our baby, but as devoted parents, we felt that our 24.7 care at home would be more suitable for him than the hospital. We tried the NG tube for a day but the doctors did suggest that we take it out. Our nurse came to help us weigh him and gave us support. We ran tests at the doctors office to make sure he was alright, and after couple weeks  Bryce has finished his antibiotics and is eating again about 3-6 oz per meal. YEAH!

Knowing how much and how often a baby eats seems relatively easy. New parents catch on the the clues of the child (hands to mouth, a noise, a  cry) that say, "hey, I'm hungry." Feeding Bryce is not so easy - its a full time job -I don't know why he refuses food other than its painful due to acid reflux.  We do have our bad days, but most the time we can cope still with this and do play dates, go for walks, and I can be a mom. Other days, I am almost spending all day trying to get him to eat. We are more experienced now, shopping ahead, writing all his food down, counting each oz and calorie, making each type of food the highest amount of calories and fat possible. While we sometimes forget to get extra avocados at the store, or make 2 batches of hummus instead of one, puree the mashed potato at night or while he is sleeping to get ready for the next meal, we always have food on hand - sometimes its the banana and pumpking


Thanks to everyone- phone calls, support, love, donations!! Happy soon 1 year birthday little one.
Thank you Eyal for visiting with us for a long weekend. Thank you Bryce, for gaining weight.  Thank you all for your love and support. Thank you for following our blog  and sharing our stories with others.

Thank you all for your donations, kindness and your time. Thanks for play dates!!




1 comment:

  1. Oh... what a cutie! think of you all so much! please keep in mind if you need anything! much love! A year... woo hoo! Happy Happy birthday little man!

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