Monday, March 18, 2013


 Here is a great quote by Amanda Bradley, "Celebrate the happiness that friends are always giving, make every day a holiday and celebrate just living!"

The beautiful yellow daffodils.  It seems as if a new light shines brightly this month- We love being in the garden. Bryce is a great helper - AND he is GORGEOUS!! look at these pictures. My son is so beautiful and always such a happy happy kid! I sure do count my blessings at night!! He is so clever and an absolute joy!!  He has two more new teeth - 6 in total- say cheese!!

He sings to me often. Ee Ii E I Oo.. Other new words are Ada ,  Da ,, and then he likes to play games with shouts - and we shout back. ahhh, ahh. he laughs.  I am happy that he has reached 17 lbs again.

He is such a cute fun kid!!! I am grateful to spend every day with him.

Bryce loves throwing his balls across the floor and seeing how far they can roll. We of course love to retrieve them for him. We are working on trying to throw in the bucket and knocking down things for even more laughs.

I feel that a cloud has lifted from my heart and mind and the days with my family are extremely joyous and precious.  There is sadness, at times when I just don't know about what the future holds, but we can go out more on walks, visit friends, etc and not be so worried about his next meal or that he can't play the same way with other children, and when someone advises us at the park - oh life gets easier when they start walking...we just smile back and say we love every min. of our life now.

Thank you Teresa, for visiting -Bryce is completely in love with Nicolette, and we just had the best time    ever!!          

There are times that are very challenging still for us, but we have grown and come along way.  We are so appreciative of our friends for such magnificent donations to our fundraiser last year and continuous support and generosity. We are feeling more and more like a family again - both getting breaks and learning to spend time by ourselves has been very helpful.                                                                                     
At the Zoo with Teresa
It's been almost 6 months since Bryce was diagnosed with SMA-1.  No one but our friends, neighbors, colleagues, and close family have ever been so kind and understanding - so supportive. To come to our house and cook a dinner - to listen on the phone, to encourage us, to cry with us, to laugh and play with us. Thank you!

We face an interesting journey. Along the way there will be bumps and turns and we will again need a shoulder to lean on - We know that you all are there for us -  You help us continue to stay strong and face each day with courage -
At the zoo with Uncle Shaun
Tonight Steve came home after meeting one of his 
former classmates from his MBA program. He coordinated with his work and others to provide us with more gifts - I can not tell you how helpful these are!! Thank you again everyone!! Thank you everyone at Providence for your generosity!

1 comment:

  1. Beautiful pictures of Bryce with the daffodils, thank you for the update! Love to all of you.