At first he was breathing at 40 breaths per min and sounded a bit "junky" as our nurse Nathan said at the hospital - but at the PICU they would put him on the CPAP. At home we don't have a CPAP. This made me nervous yesterday but it was nice to have my mom here so we could count his breaths together. I think through the night he slept more and daddy fed him a couple times. I am relieved he is breathing now around 30 -35 bpm (breaths per minute).
There is still slight to mild retraction around his ribs and lower stomach. Some say this is a natural part of SMA and some say this is part of the process when he is just sick. We will be home for awhile and I am going to be conservative with our outings. This is a great weekend for me to stock up on groceries.
We ordered a pulse oximeter and it should arrive soon. Its a cute frog one that fits over his finger or toe that the care manager suggested.
here is another video of our play time at home. taken during April.
|What a trooper with all those wires -|
|Nice to use our feeding chair in ICU beds|