Wednesday, March 19, 2014

sweetest photos ever!!

A lunch at Wilsonville Park!!

Just love our new community.

What a happy Boy!

Bryce in having fun while elevating his feet. Swelling has become a new concern, (also a  sprain from a nurse putting on a small shoe in his father's home ) but with proper care and communication we can help him overcome this,  prevent injuries and pain.
Here's our  new game - Catch the ball mama!!  Bryce is talking and playing so well. We love the warmer weather as we can get outside more.  Check out the video; I learned to take apart the remote of this remote control 4wheeler, put ceramic on around the control panel - once hardened, he can now easily drive his car. SOOO COOOL!    I think I should start a business of adapting toys.

Wednesday, March 5, 2014

Bryce's Driving

Counting our blessings.

We have settled into our new home now.

Despite continuous challenges of equipment being shared  - Bryce and I have been consulting and meeting with all providers and working very well with his team at Shriners. 

Our friends and family are every so supportive - I am finally starting to get some thank you cards out. My mom has been really great at not just playing activities but such a good grandma learning 'grandma roles-tube feeding, supporting positions, leg exercises- Way to Go Grandma!!!"

When I take a step back, its amazing how much I have learned to care for Bryce - using gtube, feeding pump at night, bipap at night and naps, venting to get air out of tummy, positioning, PT, OT, and all the various speech activities including stick out your tongue go back and forth like mommy, say .... and he repeats.  The suction machine and cough 2-3 times a day is a normal activity - His diet - that is something still in negotiation - AA diet is really the best for him,lots of carbs, fruits and veggies. I puree avocodos, sweet potatots, makes soups and his favorite of course mac and cheese with chicken pureed. He loves this soup (his new word are hot- he won't eat soup cold) hee hee

Play date with Emily

Bryce is such a joy and the greatest little man ever..

Look at this!! I feel so fortunate and blessed. I taught him "go" and now he realized that if he moves the control fwd , back, rt or lft he will make  himself "go"

Shriner's Children's hospital is simply amazing. The whole team up there is just wonderful. We began to have Bryce followed by this team of Neurologists, Dieticians, PT, OT, since October of 2012.
Here's a video of new words "Nona"
 Little mister mister keeps surprising all of us with his new skills and such great attitude - such joy!!