Tuesday, April 26, 2016

Driving - April

Bryce is super cool as he drives around and checks out the cars at the museum. Its been a wonderful change to see his energy levels up and getting out of the house.

This moment is so precious!!

Since the last hospital stay, we have been on and off oxygen - with multiple respiratory illnesses. We are now facing gastric complications too -

All in all, chin up, we are breathing on our own at 98-100 and HR 110- 140 during the day and activity. If in respiratory distress or gas pains his  HR goes up to 190 with RR at 45- but he can calm down with albuteral treatments, rest, and other distractions like books, grandma, toys.

We are experiencing new symptoms these days. We are working with the best of teh best.


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