Monday, June 13, 2016

Cooling Down!

 Summer Fun! Wow it got hot early this year at 99 and 101!
GI Joe - Real American HERO
Well, thats what we call the army guys

Staying cool in the boat pool at Grandma's

We had a mucus plug due to the malfunction of the humidifier - fisher/Paykel, per manufacturer, there was a loose wire - we had to go to the hospital because the machine stopped working and started up again as and unfortunately water got in Bryce's tubing again. This time, he dropped to 89, I got him back up, but with repeated treatments, and 79 lowest I called 911.

We were in and out of the hospital thank  goodness he recovered well. I am so grateful for all the love and support.We spent the rest of the weekend with Grandma. I have been getting 2nd, 3rd opinions from PGE and Bear Electric for any other problems in my home that were in question besides the faulty medical equipment. Very busy.

Bryce's respiratory system has been declining with the degeneration of SMA-1. We have known that this is the routine and care plan. It never gets easier. Friends help, thought we are still working on making more friends here in Wilsonville. We miss our friends from Portland so much!!

Marsh-mellow castle

 It is with great love, faith, and support, and hopefully establishing more friends in our community that we can provide Bryce with the guidance, and strength to continue fighting this disease.

Bryce is one amazing child!! He speaks like a 5 1/2 year old, and loves to tell stories and play!!

checking out the added foundation for
marsh-mellow castle
Battle stations!!! Army guys,
 meet transformers

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